Thursday, September 27, 2007

So, what should I look like?

I've been really anxious about all of the surgery I have in my future. We've gotten comfortable with the decision to do the bilateral mastectomy, rather than just the right breast. I'm only 35 now, and, because of the BRCA2 mutation, my chances of having breast cancer again in my lifetime are very high. Rather than spend the rest of my life in a cycle of worry-mammogram-biopsy-worry, Zack and I decided that it would be better for our quality of life to remove the left breast along with the right. As Dr. S says, "it's just an overgrown sweat gland". (Here's hoping the insurance company agrees with our assessment. All my doctors have offered to write letters and fight for me if it comes to that.)

Yesterday, Zack & I met with a plastic surgeon about the reconstruction options. Dr. L spent over an hour with us - it was really incredible. The biggest decision to make up front is whether to do a primary reconstruction (where the plastic surgeon would begin the reconstruction process during the same operation as the mastectomy), or a delayed reconstruction. Radiation does nasty things to skin, other tissues, and implants. Therefore, the chances of complications go up astronomically if I start reconstruction before the radiation. Bottom line: because I'll need a heavy series of radiation treatments after the mastectomy surgery, there isn't a lot Dr. L would be comfortable doing until that process finishes. Zack and I feel strongly about avoiding complications that would lead to extra surgery, so we've decided not to take the risk.

For me, this means that I'll wake up after the mastectomy with a completely flat chest. In some ways, I welcome this opportunity to see if I mind that body shape before making a decision to change it. (I just had a flashback to being the last girl in my gym class to wear a training bra). Zack, of course, has been absolutely supportive of whatever decision I ultimately make. His only concern has been my emotional well-being: he worries that the dramatic change will be hard for me to assimilate.

Our meeting with Dr. L took a lot of the pressure off, because we don't need to make a decision right away about what sort of reconstruction to do (implant and/or using part of a back muscle). Federal law requires insurers to pay for post-mastectomy reconstruction whenever we decide to do it - even years from now. The reconstruction process takes longer than I thought, though (4-6 months).

Overall, we are happy about our decision to wait because it matches our priorities. Step one: beat cancer. Step two: figure out a cup size.

5 comments:

Michaela said...

also being the last girl in my class to graduate to a bra, I especially admire your candor. I'm happy to donate some of my extras; if only it was that easy...

Anonymous said...

The number of breasts you have does not lessen our love for you and your importance to all of us out here in the either. Whatever you and Zack decide is the right decision. Besides, if breasts were so important, there would have been more than 2. Maybe 2 in the front and 2 in the back so they could be seen coming and going.

Anonymous said...

Hoy here,
Dolly Parton, Jane Russell, and Marilyn Monroe all had or have back problems.

Anonymous said...

I am amazed that you can put into such candid words this whacked and twisted maze of choices you are making your way through. Thank you. As for the decision, Keep your eye on the ball, Kid. The current ball being get better first. Love you.

Erin said...

I think I pretty much moved out of a training bra more on sheer determination than on actual volume. And I got flat jokes straight through senior year in high school. If I thinned up and got athletic, I'd be back to an A cup in no time :)

This is, I can only imagine, a very weird decision, but I'm so glad every day that we move closer to a healthy Lynn. If I'm not mistaken, there are a lot of wonderful support groups out there for breast cancer, so if you ever wanted to, you could contact someone who went through the bilateral and ask them what it was like for them.

No offense to your rather nice looking breasts, but I've always been of the opinion that what was really Lynn about you was situated much further north of your shoulders. XO